Prayer Request

I have not had a great day.  I’ve had a cough and a sore throat.  I’ve been tired.  I’ve been more nauseated this treatment than the previous two and that has extended through today…10 days post-treatment when I am usually feeling better.  Was feeling kind of sorry for myself, and then I saw a dear friend’s status update on FB – her little boy is in the hospital (AGAIN) with a blood infection and high fever.

MORNING UPDATE 10/11 :

Sam was admitted to the PICU overnight.  He had a rough night but is doing ok this morning…there is sepsis in his line- confirmed by now a 2nd episode of septic shock after getting TPN in that line (releases the ‘bugs’ into his bloodstream and his body responds….must like an FPIES reaction look except for Sam, his FPIES reactions aren’t this quick/severe); and we know it is from the line because the cultures are coming back positive. They are narrowing down what the bug actually is so they can treat it with a much stronger/specific antibiotic. There is a small hope that they will be able to “clean” the infection out of the line but likely he will have to have the line removed. So many emotions as this line was supposed to help him….Please keep the prayers coming.

Little Sam is just a couple of months older than Ella.  He has FPIES, like Ella.  Only his is much, much more severe.

FPIES is complex and difficult to write about without being long-winded, so I won’t right now.

But because of this intestinal illness, Sam’s body also can’t absorb nutrients like he needs to, and he has been frequently hospitalized.  He has three older brothers at home who are also greatly impacted by FPIES.

Please check out Sam’s blog for a glimpse into their family and their FPIES life…just the first three or four posts, and you will see some of what they are dealing with: http://fpiesmudpies.blogspot.com/

Ella has outgrown nearly all of her FPIES symptoms, and in fact, rice is her only “trigger” now – she can safely eat all other foods as far as we know.  Sam doesn’t have the same outlook anywhere on the horizon.

Could you specifically pray these things for Sam and his family:

  • Healing from the blood infection
  • The ability to try/tolerate new foods in the near future
  • Guidance for his doctors
  • Strength for his mama (and daddy)! 🙂
  • Normalcy for his brothers
  • HEALING from FPIES for Sam

Feel free to leave Joy a comment here or on her blog to let her know you’re praying for Sam!  She doesn’t know I’m writing this post, but I’m going to let her know.

       FPIES shirt from Sam’s Blog – Ella has one to match! 🙂   Click on the picture to visit their blog
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About Candace

Stay at home mom of three small kids (3, 2, and almost 1) -- about to embark on the biggest journey of my life.
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7 Responses to Prayer Request

  1. candace……you truly are an amazing person….where most people would be wallowing in their own self pity….you find the strength to put your own issues aside and pray for others….you are just too kind!! i’ve read joy’s blog before(thanks to you) and i am crushed as to what that family endures. i will keep them in my thoughts and prayers!!!!!! ((((((HUGS FOR ALL))))))))

  2. Julie says:

    I agree with Colleen, you are amazing because you are still such a giving and thoughtful person in spite of what you yourself are going through! I’m so sorry to hear Sam is in the hospital again, he and his family will be in my prayers. I hope Joy finds strength and peace, it must be so difficult to watch your child go through such a thing.

  3. Joy says:

    Candace!! Thank you for the prayers….and so much gratitude for thinking of my little man when your plate is so full yourself. You are truly a beautiful person and this post (as well as your support and friendship over the last year) is a big giant virtual hug I needed in this isolating diagnosis and complications Sam has had from it. Blessings- Joy

  4. joy, i hope today turns out to be a better day for little sam..(((HUGS))) and prayers to you and your family!!!!!

  5. Brandi says:

    Poor sweet boy! I will be praying for him and for the rest of his family.

  6. Krista says:

    I am praying for your friend and her family and sick little boy. I am praying for you and that your throat will get better and not worse, I am praying that you are already in bed and resting right now!

  7. Pingback: Pumpkin Patch THEN + Other Random | Great is Thy Faithfulness

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